Thursday, March 3, 2016

Update Number 3

No update. They are proceeding but no real details. Nurse said they were discussing whether or not to do the Konno, which is the valve replacement, but she doesn't know if they are. Dang it. Go ask!  This is worrisome because we don't really want anything to be wrong with the valve. If we start messing with the valve, aka replacement, then we continue to mess with the valve, replace it multiple times, as she grows. 

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The year I didn't post because it was overwhelming, and I'm not sharing that part yet.

I've been meaning to post Lydia's medical update since her comprehensive clinic visit on July 3, 2024.  The notes have been written ...