Miss Lydia is still just chilin', sleeping her days away. I thought her little face was less swollen yesterday, but today it really is - she's back! She is doing really well and continues to improve. She is now off of 2 out of 3 heart medications and off the pacemaker. She's still receiving her TPN fluids and Lipids, but she's now up to 6 mL of breast milk per hour. To put this in perspective, before surgery she only got 6 mL every 3 hours. We continue to wait for Dr. to say it's time to close her chest. Hoping and praying that happens tomorrow.
Tuesday, June 30, 2015
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The year I didn't post because it was overwhelming, and I'm not sharing that part yet.
I've been meaning to post Lydia's medical update since her comprehensive clinic visit on July 3, 2024. The notes have been written ...

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I stayed home with Lydia for three straight days to potty train. We then sent her to preschool for two days and MaMa & PaPa's for ...
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I've been meaning to post Lydia's medical update since her comprehensive clinic visit on July 3, 2024. The notes have been written ...
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I have not posted since September of 2024, so on the eve of the eve of Lydia's 10th birthday, let's catch up. I'll take you f...
Way to go Lydia!
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