22q11 Clinic Visit
Audiology - Lydia wouldn't sit still long enough to get her hearing checked very well. We'll try again in 6 months and don't anticipate any problems. And, she's not as waxy as she used to be. :-)
Dr. Arganbright, ENT - Lydia's ears, nose and throat are super duper. So super duper that we need to get that trach out already. Jill, how I will refer to Dr. Arganbright because her name is long and because she's so cool I can just call her Jill. Jill is still hopeful to decannulate late this summer or very early fall.
Dr. Felt, Endocrine - All good. She's small, we knew that. We'll keep waiting to see if she stays proportional and on the growth chart. I once again reminded them that I am the tallest female on either side of Lydia's blood related families. I'm not a giant, I'm 5'3". They somehow have it in their minds that she will be 5'5". Whatever.
Dr. Cocjin, GI - He's so funny, Lydia thinks so too. He is happy with her diet and her pooping. ;-) He upsized our Mic-Key button since Lydia's belly is growing, but gave the new one to me to put in so that he and Lydia could remain friends. Doctors let moms tick their kids off instead of them, if at all possible.
Dr. Raje, Immunology - Ugh. Still no live vaccines, so varicella, MMR and rotavirus. We are waiting on one T Cell count to rise. It's been rising, just not enough. They want her to be at 300 and she's at 192. At 200 they will begin to consider vaccines for kids who aren't sick often, so Lydia can be considered at 200. Cross our fingers for November or December.
Dr. Shah, Cardiology - Lydia's ticker checks out nice! She was great during her echo and fell asleep at the very end. Dr. Shah is still pleased with all the repairs and we are still watching a few spots...a few spots that we will forever be watching because Lydia's heart is repaired, it's never normal. She is cleared for annual cardiology visits...annual! Wuhoo!
And here is documentation of what happens when they lock you in an exam room for 8 hours! :-)
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