If you thought it was because of her heart, you are actually not correct. That's a relief, huh? Lydia's Cardiologist has said that Lydia's heart is functioning fully and all her repairs are working well. She is at no greater risk from a heart standpoint than any other healthy 5 year old.
If you thought it was because of her immunodeficiency, you are correct. Is that better or worse? Lydia's Immunologist has said that due to Lydia's 22q11 Syndrome her immune system is still week and will not fight off infection as quickly or efficiently as any other healthy 5 year old.
She suggests we not send Lydia back to preschool or daycare this summer unless we must. Lydia's T-Cells are high enough, when looked at in combination with several other factors, to receive immunizations. However, they are still very low and it's hard for her to fight off infection.
We are considering sending her to preschool two days a week. We are fully aware of their precautions and safety measures, which are by the book. There will also be 4 students and 2 teachers only that she has contact with at school. We don't know what is right. We just have to do what feels right for us.
I'm not sure what this will mean come August when she is supposed to start Kindergarten. She has her heart set on that Kindergarten. She talks about it non stop. We walk to the school to visit, we discuss the playground at length, we even talk about what she will pack in her new backpack and which shoes she is going to wear. This girl is ready to be a LVE Eagle!
I really hope she gets that experience, in the school, learning with other young minds, even if it is cut short with another stay at home order this fall and winter. I'd be okay with a little home for the holidays time.
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