Thursday, June 14, 2018

Happy Day Lydia!

From your Mommy:

Lydia Rose is turning 3 today! She is precious in every way, the sunshine in my day. She is the joy in my soul and the love of my life.

What a year my sweet girl has had. Lydia healed from her submucous cleft palate repair surgery. She started tiny tots gymnastics, passed her sleep study, and had her trach removed. Lydia graduated from the Home Vent Clinic, started speech therapy and Parents as Teachers, and visited a typical pediatrician for the very first time. We went to Sesame Street Live, took a Winter Solstice Luminary Walk, enrolled in Preschool, and then hid out for a couple months because of the measles. We took a trip to Colorado! She just aged out of Infant Toddler Services and now we prepare for Lydia to get her live vaccines and have her tonsil removed.

To use the words of Lydia Rose, “Happy Day!”

From your Daddy:

From the moment you were born you have shown us all what it means to be a fighter. You have punched your obstacles in the face and have become such a happy, hilarious and beautiful child.

I will forever be the lucky father of such a strong and incredible daughter. Two claps and a Ric Flair for my little girl! 

Happy Day Lydia Rose!








Wednesday, May 30, 2018

June 28th is a big day for Lydia


May 11:  The Kansas City Star Reports:

It's been more than 21 days, or one full incubation period, since the last known public exposure. But Mary Anne Jackson, the director of the infectious disease division at Children's Mercy Hospital, said it's not yet time to relax.
“We do not say a measles outbreak is over until we get past two incubation periods. That’s 42 days, folks," Jackson said Friday during a presentation to health officials at the Kansas Infectious Disease Symposium in Olathe. "I think we still have a little work on our hands."
http://www.kansascity.com/news/business/health-care/article210937869.html
June 1:  It will officially be two full incubation period.  Goodbye Measles.
June 28:  Lydia's 3 year old wellness check up...oh yeah, and they day she gets her first MMR vaccine.  Yay!  You read it folks, Lydia's T Cell numbers are high enough to receive her live vaccines.  We're going to pre-school vaccinated.  No medical exceptions for us.  Wahoo!  Lydia will receive her MMR on June 28th, then the Varicella Vaccine a few weeks later. 

Tuesday, May 29, 2018

Colorado Adventure

Mom and Dad were spending a month in Colorado, so why not join them for a week?

We drove out to Colorado and made excellent time.  I really thought Lydia was going to be cranky and need more stops, but turns out she's a traveler and took it all in stride.  She didn't sleep a wink on our drive from 6am to 6pm.  Geesh!  

Dan helped Dad clear the lot for their future vacation home in the mountains.  It was a lot of work so we fed them well each morning and night.  They were on their own for lunch because we were on a mission to see and do.

Grandma, Mom and Lydia visited Twin Lakes, Buena Vista, Salida, Fairplay, Red Cliff, Minturn and Leadville.  We went to many parks and downtown areas.  We went to libraries, fish hatcheries, trails, and mining districts.  We drove on by-ways, visited Camp Hale, and kept an eye on the guys' progress at the lot.

We finished our trip with Lydia's first MLB game at Coors Field.  The Rockies lost in a heartbreaking finish to the Cincinnati Reds.  


























Surgery complete!

We've been trying to schedule a CT scan and an ENT surgery for a year now. COVID and pneumonia have gotten in the way four times. Yester...