Sunday, April 30, 2023
First Holy Communion for Lydia Rose
Growth Hormone is Back ... but there are hoops!
Growth Hormone is back at our specialty pharmacy! YAY!
It was just over a month and a half that we were without. Doesn't seem like a long time and I'm grateful it wasn't any longer but it seemed like an eternity to us. When you've seen how awesome it's been for Lydia for 2.5 years and then to not have it. Yikes.
It's not an easy process to refill it each month - lots of red tape because supply is still limited - but we have it!
Hippity Hoppity April came and went
April weather was also hippity hoppity up and down. One day winter coats, the next day shorts! Good to finally get outside, work in the yard, take walks and ride scooters...when the wind wasn't blowing us over.
Lydia got to go to the real deal salon for her haircut because I'm sick of cheap places messing it up.
We watched a really cold soccer game and spent some time with Leah and Brian one weekend!
Warm days spent outside playing and chowing.
We are building a new library in Merriam and I was able to sign a beam before it went into the building. So if you're around in 75 years when someone tears it down, look for my signature. #love4lydia
Lydia had an Antiques Roadshow project at school and needed to take something old. Dan and I gathered some things up, offered to go to the antique store or to grandparent's houses. Nope, she wasn't interested and it was kind of a hard concept. I really wanted her to take an old phone or Walkman, she wanted to take her first ever LOL doll. We landed on Great Grandma's vintage mother of pearl bangle bracelets. Okay!
Wednesday, April 5, 2023
March. What even happened?
Where did you go now, March? It came in real nice, Clark. It soured over Spring Break and I suppose had an upswing toward the end.
Lydia and Rylee had a playdate after pajama day and they had a spa day with face masks!
Lydia got all geared up for soccer and practices began. Games start in April! She had a good dentist check up with her fake nails on.
I feel like Lydia must have been pretty centered in March. Lots of relaxation, yoga, quiet times...also, some of this was how she calmed down if she was mad about something.
Lydia spent a day with Nana to kick off Spring Break and then WHAM! Vomiting, fevers, chills, coughing and all the snot, mucus, phlegm...all of it...yuck. Poor girl missed most of Mad Science Detective Camp and poor mom and dad caught the bug, we always do.
Inside Out: Lydia's Version
Anxiety - yep, about most things. Envy - uh huh, and wondering why she's different. (scars, treatments, growth hormone shots, CPAP, IE...
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I stayed home with Lydia for three straight days to potty train. We then sent her to preschool for two days and MaMa & PaPa's for ...
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Yay Lydia!!! Lydia is out of surgery and out of recovery. They repaired the subaortic stenosis and she did not need a valve replacement. Tha...
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For all of 9 years we've mostly been able to help Lydia, or allow her medical professionals to help her , with medical intervention. Su...