We began growth hormone therapy on Thursday, October 15, 2020.
Poke. Push. Wait for the click. Count to six. Done. Repeat 6 days a week.
We had our first official follow up with Dr. Feldt and Endocrinology this afternoon. Lydia was excited to show off how strong she is and how much she's grown. She even told Dr. Feldt all about the snacks she ate on the way to the appointment and how many Pringles she eats. He was very happy with her growth and please to hear things are going well.
Lydia asked everyone we encountered if they were going to poke her and then she shook her finger at them and said no pokes. That part makes me sad that she anticipates it, but she talked them out of the blood pressure cuff...again. She's the ultimate hospital negotiator. She asked if she was going to get a toy today and the answer was no but she did walk away with 5 Incredibles 2 stickers. Winning.
Lydia is just on the cusp of being on the weight growth chart and trending upward toward the height growth chart. This is big news! She hasn't been on either for years. Her growth velocity for height is predicting 3 plus inches of growth this year and she's almost halfway in under 4 months. We are playing catch up right now and trying to make up for lost time when she wasn't producing growth hormone. Now that her body is responding we are going to keep giving it what it needs for a year or more and then hope to level her off to a steady growth pattern through puberty.
A child with no medical things going on would be predicted to hit the 50 to 75 percentile of their growth chart based on their parents' heights. Lydia would be predicted to be 5'6". Since Lydia has 22q11 that prediction drops to the 10 to 25 percentile of their growth chart, so her height prediction is more like 5'2" or 5'3". That is where we are trying to get. We can't change Lydia's DNA, she has a predetermined height built into her genes, our goal is to get her there!
October 15, 2020 :: 5 years 4 months :: Home Measurements :: 38" :: 30 lbs
November 19, 2020 :: 5 years 5 months :: Home Measurements :: 38.5" :: 32 lbs
December 14, 2020 :: 5 years 6 months :: Home Measurements :: 39" :: 33.3 lbs
January 19, 2021 :: 5 years 7 months :: Clinic Measurements :: 39.25" :: 34.2 lbs
Overall Growth in roughly 95 days. 1.25 inches :: 4.2 pounds :: TONS of MUSCLE
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