Wednesday, May 30, 2018

June 28th is a big day for Lydia


May 11:  The Kansas City Star Reports:

It's been more than 21 days, or one full incubation period, since the last known public exposure. But Mary Anne Jackson, the director of the infectious disease division at Children's Mercy Hospital, said it's not yet time to relax.
“We do not say a measles outbreak is over until we get past two incubation periods. That’s 42 days, folks," Jackson said Friday during a presentation to health officials at the Kansas Infectious Disease Symposium in Olathe. "I think we still have a little work on our hands."
http://www.kansascity.com/news/business/health-care/article210937869.html
June 1:  It will officially be two full incubation period.  Goodbye Measles.
June 28:  Lydia's 3 year old wellness check up...oh yeah, and they day she gets her first MMR vaccine.  Yay!  You read it folks, Lydia's T Cell numbers are high enough to receive her live vaccines.  We're going to pre-school vaccinated.  No medical exceptions for us.  Wahoo!  Lydia will receive her MMR on June 28th, then the Varicella Vaccine a few weeks later. 

Tuesday, May 29, 2018

Colorado Adventure

Mom and Dad were spending a month in Colorado, so why not join them for a week?

We drove out to Colorado and made excellent time.  I really thought Lydia was going to be cranky and need more stops, but turns out she's a traveler and took it all in stride.  She didn't sleep a wink on our drive from 6am to 6pm.  Geesh!  

Dan helped Dad clear the lot for their future vacation home in the mountains.  It was a lot of work so we fed them well each morning and night.  They were on their own for lunch because we were on a mission to see and do.

Grandma, Mom and Lydia visited Twin Lakes, Buena Vista, Salida, Fairplay, Red Cliff, Minturn and Leadville.  We went to many parks and downtown areas.  We went to libraries, fish hatcheries, trails, and mining districts.  We drove on by-ways, visited Camp Hale, and kept an eye on the guys' progress at the lot.

We finished our trip with Lydia's first MLB game at Coors Field.  The Rockies lost in a heartbreaking finish to the Cincinnati Reds.  


























Thursday, May 17, 2018

1/2 of May in photos



Birthday boy #1 and all the girls!

Birthday boy #2 and all the girls!

All the ladies in a row...7 of us!

Why not wear your socks on your hands?

Giant Mr. Potato head teeth. 

I promise I don't encourage this.

My precious.

A gang of cousins.


Just waiting for our speech therapy appt.

Friday, May 4, 2018

Smile for Mommy


Mom and Dad are out one night.  
Grandma is babysitting.  
Mom requests a picture via text.  
Grandma says smile for Mommy.  
And this is what I get.  
Great hair day, though.


Tuesday, May 1, 2018

James and the Giant Peach

Measles: A Dangerous Illness

Olivia, my eldest daughter, caught measles when she was seven years old. As the illness took its usual course I can remember reading to her often in bed and not feeling particularly alarmed about it. Then one morning, when she was well on the road to recovery, I was sitting on her bed showing her how to fashion little animals out of coloured pipe-cleaners, and when it came to her turn to make one herself, I noticed that her fingers and her mind were not working together and she couldn't do anything.
"Are you feeling all right?" I asked her.
"I feel all sleepy," she said.
In an hour, she was unconscious. In twelve hours she was dead.
The measles had turned into a terrible thing called measles encephalitis and there was nothing the doctors could do to save her. That was twenty-four years ago in 1962, but even now, if a child with measles happens to develop the same deadly reaction from measles as Olivia did, there would still be nothing the doctors could do to help her.
On the other hand, there is today something that parents can do to make sure that this sort of tragedy does not happen to a child of theirs. They can insist that their child is immunised against measles. I was unable to do that for Olivia in 1962 because in those days a reliable measles vaccine had not been discovered. Today a good and safe vaccine is available to every family and all you have to do is to ask your doctor to administer it.
It is not yet generally accepted that measles can be a dangerous illness. Believe me, it is. In my opinion parents who now refuse to have their children immunised are putting the lives of those children at risk. In America, where measles immunisation is compulsory, measles like smallpox, has been virtually wiped out.
Here in Britain, because so many parents refuse, either out of obstinacy or ignorance or fear, to allow their children to be immunised, we still have a hundred thousand cases of measles every year. Out of those, more than 10,000 will suffer side effects of one kind or another. At least 10,000 will develop ear or chest infections. About 20 will die.
LET THAT SINK IN.
Every year around 20 children will die in Britain from measles.
So what about the risks that your children will run from being immunised?
They are almost non-existent. Listen to this. In a district of around 300,000 people, there will be only one child every 250 years who will develop serious side effects from measles immunisation! That is about a million to one chance. I should think there would be more chance of your child choking to death on a chocolate bar than of becoming seriously ill from a measles immunisation.
So what on earth are you worrying about? It really is almost a crime to allow your child to go unimmunised.
The ideal time to have it done is at 13 months, but it is never too late. All school-children who have not yet had a measles immunisation should beg their parents to arrange for them to have one as soon as possible.
Incidentally, I dedicated two of my books to Olivia, the first was 'James and the Giant Peach'. That was when she was still alive. The second was 'The BFG', dedicated to her memory after she had died from measles. You will see her name at the beginning of each of these books. And I know how happy she would be if only she could know that her death had helped to save a good deal of illness and death among other children.


https://roalddahl.com/roald-dahl/timeline/1960s/november-1962

Living in the age of Measles


The Johnson County measles outbreak isn't over.
The Jackson County measles outbreak isn't over.

As of May 1, 2018, Kansas has 20 cases associated with its outbreak, Missouri has 10 cases.

Lydia had a fever from a little bug a few weeks ago, but before that I wondered if it was measles. Symptom: Fever

Lydia was teething last week, molars, but before that I wondered if it was measles. Symptom: Mouth Sores

Lydia has a watery eye last night, allergies, but before that I wondered if it was measles. Symptom: Watery Eyes

Lydia has always coughed due to her trach, now due to her large tonsils and learning to eat orally, but I wonder if it is measles. Symptom: Coughing

On May 17th Lydia will have her blood work done. On June 6th we will find out if she can have the MMR vaccine. 

On what date will the measles outbreak be over?


The bits and pieces I can't fix for her.

For all of 9 years we've mostly been able to help Lydia, or allow her medical professionals to help her , with medical intervention.  Su...