Tuesday, November 14, 2017

Busy week for Lydia

Last week was a busy week for Lydia!  We had several appointments and check-in meetings with "her people."  

Cindy from Parents as Teachers with the BVSD came to the house on Monday.  She and Lydia talked about feelings.  We are going to make feeling cards, learn feelings in sign, and start talking about expression more.  

Carrie and Dana from Infant Toddler Services came to the house on Tuesday.  Lydia's height and weight are holding steady.  We've been adjusting her diet and therefore her calories, so no weight gain was expected.  For awhile we switched from 2% milk to Ripple milk, it's a pea plant based milk.  This was to hopefully to prevent Lydia vomiting so much.  We started a medicine for the same thing around the same time, so I put her back on 2% to see if the meds were doing the trick and they are.

Lydia had Speech Therapy at CTS with Ann on Thursday.  She loves it there!  We pull in the parking lot and she gets all excited.  Once we are in the building she makes a bee-line for the door and goes straight for the sensory table.  Ann comes to the waiting room to get Lydia and Lydia takes her hand and turns to wave goodbye to me.  Excuse me, I get to go too!

We visited the General Surgery Clinic on Thursday to check a sore spot around her gtube site.  They put some silver nitrate on it and we are good as new.  Also, the nurse said that when we remove the gtube (who knows when, it will be awhile!), they can remove some of the tissue that has grown around the site and clean it up.  

And finally, we met Lydia's new, normal, typical pediatrician, Dr. Davis.  This is the first doctor we have ever see outside of CMH walls.  Not to worry, the office is an affiliate and Dr. Davis has access to Lydia's medical records.  She was completely prepared and it totally impressed me how much she knew about Lydia.  Dr. Davis is on the board at CMH, is very well established in the metro, and has seen kiddos with everything Lydia has and is dealing with.  She was wonderful with Lydia and I really enjoyed her.  Win!












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