When a child gets a trach all normal plans go out the window.
Lydia has been followed by specially trained pediatricians on the Home Vent team for almost 2.5 years. This is a specialized care team that provides pediatric care to kids with trachs at CMH. It includes doctors and nurses, GI specialists, dietitians, OT, speech, you name it, they've got it.
This team has been by our side every step of the way. They are who I called if Lydia's fever broke 100, if her pulse ox numbers dropped below 92, if we needed a prescription refill or had any questions about her overall health related to the trach or not...because when you have a trach it's all related.
Just 5 weeks ago Lydia got her trach removed. A week and a half ago she graduated from the Home Vent clinic. It's bittersweet. We know this team so well and depended on them for so much. We'll miss them but we are on to bigger and better things. As Addie, dear wonderful available anytime awesome APRN Addie, left the room so she didn't cry, I didn't realize I was holding back my own tears. Lydia and her teary eyed mom made their way out of the Special Care Clinic and to the parking garage.
Lydia has an initial visit with her new pediatrician in two weeks. We'll fill her in on all things Lydia and see if she's a good fit for us. Can you believe it? A typical ol' pediatrician at a normal doctor's office. Crazy! She is affiliated with CMH and has access to all Lydia's records, so that brings me some peace of mind.
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