Monday, September 25, 2017

I know what I know, it's what I don't know.

This article says so many things I've thought, felt and wanted to say.  It expresses my worry every time we see her cardiologist, every time we have a surgery, every time she gets sick.  The scariest thing about CHD, the unknown.  I know what I know, it's that next thing to come that worries me, frightens me and scare me...for the rest of her life.

WHY FIGHTING CONGENITAL HEART DISEASE MATTERS


written by Lexi Behrndt February 5, 2015 


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The year I didn't post because it was overwhelming, and I'm not sharing that part yet.

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