Monday, June 15, 2015

This Is Her Normal

Two things we believe and tell ourselves every time we are faced with a new twist or turn:

1. Lydia knows nothing else but life like this.  This is her normal.
2. Lydia will not remember any part of this experience.

Day one for Lydia was a tough one.  She had two episodes of apnea Sunday morning which led to her being intubated in case it were to happen again.  Thankfully, it has not happened again in over 36 hours.  The doctors are also monitoring her brain activity to ensure this is not seizure related.  Again, nothing out of the ordinary has been found.  She also spent the day  getting hooked up to lots of monitors, electrodes and IVs and having a echocardiogram.

Day two was a bit more relaxed and restful for Lydia, Mom and Dad.  She had a CT scan first thing this morning and a PICC line inserted early this afternoon.  The rest of the day was pretty uneventful.  It's much nicer to see her resting ... and opening her eyes!  We had yet to get a good look at those pretty blue eyes.  


4 comments:

  1. Aunt GiGi Loves you Lydia! You are so beautiful and perfect! I LOVE your curls! I can't wait to do lots of fun things with you sweet girl!

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  2. Oh my gosh! Look at all that pretty hair! :-)

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  4. Beautiful and a real gift from God!

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