Thursday, February 23, 2023

blinkers, eyeglasses, frames, rims, specs, spectacles

 


2023 New Pinkies


2022 Light Purple, the better replacement


2022 Dark Purple, lost on last day of 1st grade


2021, First Pair of Pinks

Wednesday, February 15, 2023

Pulmonology Visit and we escaped the parade.

 



Lydia was supposed to see Psychology and Pulmonology on Chiefs Parade Day!  Nope.  Luckily we were able to push back psych and move pulm to Tuesday.  We trekked downtown at 6:45 for our 7:30am visit and ate donut holes afterwards.

All is looking...better...not good but better with her lungs.  Lung capacity and volume are increasing slightly.  Her peak flow measurement actually had a slight peak this time.  6 months ago it was a plateau.  Since her persistent winter cough is back and two antibiotics haven't killed it, we are culturing her mucus.  That means we spent extra time there trying to get Lydia to hock a loogie. 

Dr. Escobar thinks she can fly without oxygen.  Mrs. Riggs is not so sure after our night in the ER last summer in Colorado.  We agreed to get Lydia a High Altitude Simulation Test at KU or St. Luke's.  Well, they don't test kids.  Not sure yet if we have other options. 

So we're going to fly to Chicago this summer as a test run, cross our fingers we don't have any issues, and if it's a flop we'll drive home.  Do you know what happens if you are in flight and need oxygen?  Nothing, the airline can't give you oxygen.  They ground the plane.  I do not want to be responsible for grounding a flight of people not at their intended destination.  




January, you start the year off fine.











 

Wednesday, January 4, 2023

Happy New Year filled with less...

I think we did December right. 

We sat down, we read books, sipped coffee, ate delicious food with incredible people.  

We laughed, a lot. We danced. We made memories.  

We started jobs and got promotions. We enjoyed the glow of the lights.  

We filled our cups and our buckets, our glasses and our souls with just enough. 

Happy New Year filled with less...because I'm all for finding joy in the little things.



























 

Sunday, January 1, 2023

Girl Scout Cookie Time!!!

It's Cookie Season and Lydia is selling! 🍪 How many boxes would you like? 

All your favorites are back from last year and there are gluten free and vegan options when you choose direct ship. 

Shop Local! We deliver! $6 a box and Troop 2925 gets $1 per box sold, local council receives $3.63. Order now and select girl delivery to have Lydia bring you cookies in February! 

Thanks for supporting Lydia in discovering the fun, friendship, and power of girls together. ❤️

https://app.abcsmartcookies.com/#/social-link-landing/acd7186c-d5f5-4295-ab7a-c14b989d5fb8









Surgery complete!

We've been trying to schedule a CT scan and an ENT surgery for a year now. COVID and pneumonia have gotten in the way four times. Yester...