Thursday, May 17, 2018

1/2 of May in photos



Birthday boy #1 and all the girls!

Birthday boy #2 and all the girls!

All the ladies in a row...7 of us!

Why not wear your socks on your hands?

Giant Mr. Potato head teeth. 

I promise I don't encourage this.

My precious.

A gang of cousins.


Just waiting for our speech therapy appt.

Friday, May 4, 2018

Smile for Mommy


Mom and Dad are out one night.  
Grandma is babysitting.  
Mom requests a picture via text.  
Grandma says smile for Mommy.  
And this is what I get.  
Great hair day, though.


Tuesday, May 1, 2018

James and the Giant Peach

Measles: A Dangerous Illness

Olivia, my eldest daughter, caught measles when she was seven years old. As the illness took its usual course I can remember reading to her often in bed and not feeling particularly alarmed about it. Then one morning, when she was well on the road to recovery, I was sitting on her bed showing her how to fashion little animals out of coloured pipe-cleaners, and when it came to her turn to make one herself, I noticed that her fingers and her mind were not working together and she couldn't do anything.
"Are you feeling all right?" I asked her.
"I feel all sleepy," she said.
In an hour, she was unconscious. In twelve hours she was dead.
The measles had turned into a terrible thing called measles encephalitis and there was nothing the doctors could do to save her. That was twenty-four years ago in 1962, but even now, if a child with measles happens to develop the same deadly reaction from measles as Olivia did, there would still be nothing the doctors could do to help her.
On the other hand, there is today something that parents can do to make sure that this sort of tragedy does not happen to a child of theirs. They can insist that their child is immunised against measles. I was unable to do that for Olivia in 1962 because in those days a reliable measles vaccine had not been discovered. Today a good and safe vaccine is available to every family and all you have to do is to ask your doctor to administer it.
It is not yet generally accepted that measles can be a dangerous illness. Believe me, it is. In my opinion parents who now refuse to have their children immunised are putting the lives of those children at risk. In America, where measles immunisation is compulsory, measles like smallpox, has been virtually wiped out.
Here in Britain, because so many parents refuse, either out of obstinacy or ignorance or fear, to allow their children to be immunised, we still have a hundred thousand cases of measles every year. Out of those, more than 10,000 will suffer side effects of one kind or another. At least 10,000 will develop ear or chest infections. About 20 will die.
LET THAT SINK IN.
Every year around 20 children will die in Britain from measles.
So what about the risks that your children will run from being immunised?
They are almost non-existent. Listen to this. In a district of around 300,000 people, there will be only one child every 250 years who will develop serious side effects from measles immunisation! That is about a million to one chance. I should think there would be more chance of your child choking to death on a chocolate bar than of becoming seriously ill from a measles immunisation.
So what on earth are you worrying about? It really is almost a crime to allow your child to go unimmunised.
The ideal time to have it done is at 13 months, but it is never too late. All school-children who have not yet had a measles immunisation should beg their parents to arrange for them to have one as soon as possible.
Incidentally, I dedicated two of my books to Olivia, the first was 'James and the Giant Peach'. That was when she was still alive. The second was 'The BFG', dedicated to her memory after she had died from measles. You will see her name at the beginning of each of these books. And I know how happy she would be if only she could know that her death had helped to save a good deal of illness and death among other children.


https://roalddahl.com/roald-dahl/timeline/1960s/november-1962

Living in the age of Measles


The Johnson County measles outbreak isn't over.
The Jackson County measles outbreak isn't over.

As of May 1, 2018, Kansas has 20 cases associated with its outbreak, Missouri has 10 cases.

Lydia had a fever from a little bug a few weeks ago, but before that I wondered if it was measles. Symptom: Fever

Lydia was teething last week, molars, but before that I wondered if it was measles. Symptom: Mouth Sores

Lydia has a watery eye last night, allergies, but before that I wondered if it was measles. Symptom: Watery Eyes

Lydia has always coughed due to her trach, now due to her large tonsils and learning to eat orally, but I wonder if it is measles. Symptom: Coughing

On May 17th Lydia will have her blood work done. On June 6th we will find out if she can have the MMR vaccine. 

On what date will the measles outbreak be over?


Thursday, April 19, 2018

Happy Day! Tonsillectomy Scheduled!

On July 24, 2018 we say goodbye to Lydia's tonsils FOREVER!  They're great big and giant like and need to go.  We really think they are preventing her from swallowing the food she wants to eat.  They also keep her from sleeping peacefully and soundly throughout the night.  Dr. Arganbright only had to take one look at the tonsils and listen to the sleep videos I recorded to say they've got to go.


Monday, April 9, 2018

Allow me to introduce...


...our newly enrolled preschooler!




Lydia will be starting school in the 3 year old classroom at Valley View United Methodist next school year.  She will be a zebra!  

We are so thankful to Dana for the recommendation.  The director of the preschool, Leona, has been phenomenal in figuring our the right option for Lydia, having extreme patience with us, and in her willingness to learn about the g-tube so she can feed Lydia at school.  

Lookout this August for our first of many first day of school pictures!


Surgery complete!

We've been trying to schedule a CT scan and an ENT surgery for a year now. COVID and pneumonia have gotten in the way four times. Yester...