Friday, December 18, 2020
Do you need a cookie supplier?
Wednesday, December 16, 2020
Growth Hormone Therapy: December
We began growth hormone therapy on Thursday, October 15.
She is tired and will sleep in past 7, sometimes even til 8 on the weekend.
She is hungry and will eat from 3:30pm to 7:30pm if you let her.
She is growing and is getting noticeably heavier. She's gone up a shoe size.
We are now at 5 weeks or 30 days of shots.
Poke. Push. Wait for the click. Count to six. Done. Repeat 6 days a week.
I know she's wearing masks to school, doing Daisies outside and attending virtual dance class, so the likelihood of getting a cold is less, but she is physically stronger and seems healthier. It's hard to put my finger on it but last school year she would have already been on her 2nd or 3rd cold. The cold that lingered from October to March or April. This year, only one, and one that she overcame in about a week rather than the typical two it used to take her. I'm not sure this has anything to do with growth hormone therapy but I'm counting it as a blessing.
We made the right decision. 60 days. 1 inch. ::3.3 pounds.
October 15, 2020 :: 5 years 4 months :: 38" :: 30 lbs
November 19, 2020 :: 5 years 5 months :: 38.5" :: 32 lbs (corrected)
December 14, 2020 :: 5 years 6 months :: 39" :: 33.3 lbs
Thursday, December 10, 2020
Would you like to swing on a star...
Lydia Rose.
She's been asking for a swing since her birthday, at least.
It's been delivered...in parts and pieces...that Papa and Daddy had to put together.
What fun is a gift if it's not a project too!?!
Wednesday, December 2, 2020
Happy Thanksgiving from our bubble to yours!
Parade - eh, at least they tried.
Weather - eh, I like cold holidays.
Dinner - eh, oh wait, delicious.
Thankful for my brave girl.
Thankful for my loving family.
Thankful for my village of friends.
Thankful for my awesome job and team.
Thankful for being able to connect with everyone on Thanksgiving.
Inside Out: Lydia's Version
Anxiety - yep, about most things. Envy - uh huh, and wondering why she's different. (scars, treatments, growth hormone shots, CPAP, IE...
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I stayed home with Lydia for three straight days to potty train. We then sent her to preschool for two days and MaMa & PaPa's for ...
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Yay Lydia!!! Lydia is out of surgery and out of recovery. They repaired the subaortic stenosis and she did not need a valve replacement. Tha...
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For all of 9 years we've mostly been able to help Lydia, or allow her medical professionals to help her , with medical intervention. Su...